Friday, October 22, 2010

A friendship that shares everything - Christine's story - 31 for 21 day 22



As Mary was starting this year’s 31 for 21 challenge we had joked about me doing a “guest blog” spot at some point during the month. Then she did the post that took us back to two of her favorite posts from when she started this blog. One of those posts was from her first (and to this point) only Friendship Friday edition. The friend she talked about in that post is my sister, Christine. We thought it would be interesting to do the guest blog spot, but have me interview Christine to get her point of view on their friendship and that period when Mary and Justin learned of Riley’s diagnosis.

A friendship that shares everything...

Christine and Mary met at Rocky Mountain College, as Mary noted in the Friendship Friday edition. Christine recalls how crazy it was how instantaneously they hit it off and how thrilled she was to later find Mary in the same dorm. Looking back, for the short period of time they really had together – in the grand scheme of things – before Mary and Justin moved to Spokane, it really is spectacular, the bond that was forged in that time.

Christine remembers participating in a walk at Rocky and she and Mary came in “dead last” simply because while they were walking, they were doing a great deal of talking. Their friendship became one where they told each other everything – and that’s just not something that happens everyday.

The Call

It had been quite some time since Christine had talked to Mary and she happened to call her the day Mary and Justin were going to the genetic counselor (following the confirmation the day before). Christine says she knew instantly that something was wrong, “I immediately thought they had lost the baby.” Because that’s where her thoughts went to right away, she remembers feeling relieved that it was Down syndrome – though she was scared for them. Mary remembers the support Christine provided in that conversation, while Christine simply says, “She talked…And I just listened.”

During that phone call, Mary told Christine of the book their doctor had given them, which she went out and bought so she could begin learning more as well. However…“The book was scary!” Eventually she had to stop reading “the scary parts,” because she couldn’t see worrying over things that might never be a part of Riley’s reality. Prayer was a constant factor throughout the remainder of this pregnancy – though prayer is a big part of Christine’s life in general.

Being Apart

Christine remembers how much she did not want Mary and Justin to go when they moved to Spokane, but believes their location is a great blessing. To her, their being in Spokane with the Guilds’ School and the other resources is a great gift, not to mention the familial support they have there. She also loves hearing about the friends Mary and Justin have made through Riley. It’s wonderful to Christine that Mary has people in her life who can genuinely relate to her family’s experiences. That's not to say it isn't frustrating when things like the Buddy Walk come up and it's impossible to be there. 

When asked about her ability to not say the wrong thing, so to speak, she shares that it’s important to her that she does more listening than talking, as people so often speak before they think.

All These Kids

We talked a little bit about “the guilt factor,” and Christine had this to say about it: “Yeah, you know, of course I’ve thought about it…I mean four kids, all healthy…What are the odds of these things? How does this happen?”

Although, you have to look to the positive, once Riley was born there was so much to be thankful for. With all the horror stories and possibilities the book had filled their minds with, to have this boy, this beautiful boy who did not have a slew of health issues…It’s a blessing. To have Mary and Justin do the amniocentesis when even in their minds they thought it was pointless…It’s a blessing. To have a brother who was so clearly meant to be Riley’s big brother extraordinaire…It’s a blessing. To move to Spokane with a school built entirely around the concept of helping children with developmental disabilities…It’s a blessing. To have familial support that is so unshakeable…It’s a blessing. There are so many things to be thankful for.  

When asked if she has ever specifically addressed Riley’s disability with her children, Christine notes she didn’t make a big deal out of it mostly because she didn’t think it was something her kids would really notice and she was following Mary and Justin’s lead with Rex. They were aware that there had been concerns for Riley’s health through their prayers for him, but outside of that, Christine has always said to them, “It might take him longer to get there, but he will be able to do everything you can.” She loves the Down syndrome Creed.

What does this friendship mean to you?

After a brief pause to formulate her words, this is what Christine has to say that sums up her friendship with Mary beautifully.
By being friends with Mary; she helped make me the person I am today. She brought me out of my shell...I might not still be the most outgoing person, but she brought backbone into my life. Looking at me, she went on to say, you might not see the difference, but part of who I am today, belongs to her.
For me, there was something about Mary and Justin that, I think, for all of us it was as if they had always been in our lives. Perhaps it was the confidence my sister developed in herself through this friendship that made us love them or maybe it was just whatever “it” was that first time they met somehow filtered out to the rest of us. Whatever “it” is, we’re glad to have you in the family Kibbes.
--Becca
Christine with her family
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Thursday, October 21, 2010

Riley's list- 31 for 21 Day 21


Since its the 21st day of the 31 for 21 Challenge it seems like a perfect day for the list of 21 things we love about Riley.  You have find my previous lists here and here.  Once again Rex will be helping me with this list. 

1.  Riley has the most amazing laugh.  His giggle melts my heart daily. 

2.  Riley loves to shoot hoops with his big brother.

3.  Riley loves to eat.  His favorite thing to eat is is cheese. String, cottage, yellow, white he loves them all.

4.  Riley loves to draw...  and not on paper. 

5.  Riley likes to pray with us at dinner time.  He is getting pretty good at the sign of the cross.

6.  Riley loves to wear Rex's Halloween mask...  creepy Lil scary guy running around the house.

7.  Riley is doing great at school.  He loves to ride the bus to school.   Miss Mamy (Amy) Miss Jana, Miss Michelle and Miss Alice are some of his favorite people. 

8.  Riley loves to wrestle with Rex. 

9. Riley has a sense about when people really need a hug or a smile.  He seems drawn to those people who could really use some love.

10.  Riley loves his new babysitter Kristi.  He sings a funny little song about Timmy the Turtle with her that cracks me up.

11.  Riley loves to hide things.  I currently can't find the card reader thingy for the computer that has my memory card for the camera in it.  I know he put it somewhere safe. 

12.  Riley loves to hide himself.  He will crawl in the smallest space available to play and loves to hide under the sofa cushions. 

13.  Riley loves books.  He loves it the most when Rex reads to him. 

14.  Riley loves animals.  He loves the real kind and books with animal pictures.

15.  Riley loves the chickens at Gramma and Grampas house.  He cockadoodle doos at the roster. 

16.  Riley is super curious.  He has an amazing attention span when he is checking  things out.  When he is in a new place he likes to check everything out. 

17.  Riley is a huge Elmo, aka Melmo, fan.  He will sing a long and enjoys his friend big bird too!

18.  Riley can tell you the letters in his name.  Although he prefers if he doesn't think you can hear him.

19.  Riley can spot the gold arches a mile away.  Those darn french fries...

20.  Riley loves to sleep in Rex's bed.  Some days he wants to take his nap there too.

21.  Riley amazes us daily with how smart he is.  I wish he didn't always have to test us and his boundaries to demonstrate his skills. 

Wednesday, October 20, 2010

The Notebook 31 for 21 Day 20


If you've read this blog for a while you know that I love Riley's special ed preschool teacher.  Each day we send a note book back and forth in Riley's backpack and she gives us a short update on how the day has gone.  I highlighted some of these messages while I was trying to decide which preschool to select last spring.  You can find that post here.  I love the notebook!

Yesterday the notebook came home and it reported:

Holy Catfish Batman!  Riley was ON today!  He raised his hand and volunteered that the month was October during calendar.  He read names of two of his friends during circle and he Clearly said every letter in his name.  He also called Alice by name and thanked her for changing his diaper :-)

OK first I had to laugh at Holy Catfish Batman.  I love that she is so excited for Riley.  Then we have to celebrate Riley.  I know he does well at school and he works really hard to complete the tasks asked of him.  To raise his hand by himself and answer a question about what month it is is HUGE.  That is a ton of processing in a very short amount of time to come with an answer on demand in a group setting.  Then you add in that he is recognizing his friends names as well as his own during circle is very impressive.  He has been telling us the letters in his name for a while now but only if he didn't really think anyone was listening.  It was like he was keep a secret from us so we wouldn't expect too much from him. 

My mom is pretty sure that if he is thanking Alice for changing his diaper then he is ready to not have a diaper.  I'm sure he is too...  but I'm not.  That is a lot of work making sure a little person gets to the potty all the time.  I need to make the time and just dive in but I've been hesitating.  His teacher is pushing it as well for a self care goal at his upcoming IEP meeting.  All things point in this direction except me wanting to deal with dirty pants and being forced to take him to the potty every time he decides it would be fun to tell me that he has to go and who really is silly enough to doubt a potty training toddler's need to make it to the potty fast.  More to come on this topic I'm sure. 

Riley's IEP meeting is next week.  I think I will always have some anxiety about these type of meetings but I'm also excited for it.  I want to see what the next round of goals will bring.  Its always interesting to me to see what the next steps in the progression of his development are.  For example I know that I want him to talk but there is a process to speech therapy.  Which sounds should be developing in which order and so on.  I find it super intriguing.  Some days I wonder if I shouldn't go back to school for special education or speech therapy.  I think it would be fun change of pace...  and then the thought of school shakes me back to reality. 

Riley with his teacher Miss Michelle  Spring 2010


Riley during school with his buddies Spring 2010


Tuesday, October 19, 2010

Bringing Sexy Back! 31 for 21 Day 19


Rex and Riley are busy!  There is just no other way to describe our schedule.  

Riley goes to preschool 4 days a week.  Twice a week he goes to two different preschools as well as private speech and occupational therapy. Rex is playing soccer with practice twice a week and games on Saturdays as well as belonging to the Cub Scouts.   He is also working on his Sacramental prep classes so he can complete his first reconciliation, first communion and confirmation this spring.   Rex decided to join the children's choir at church that thankfully practises on Sunday mornings between the masses so it doesn't conflict with anything else. 

There is a lot of coordination of schedules and shuffling of kids from there to there that goes on to get every where we need to go including work most days.  This evening for example I had to make it home from work in time for Justin and Rex to get ready and leave for Cub Scouts.  This was the first scout meeting that Justin and Rex were all dressed up in their uniforms at the same time so of course I forced  asked them nicely to let me take their picture.



There was a time in my life when I wouldn't have thought that a grown man all dressed up in a boyscout uniform was anything but creepy.  OK Sometimes still creepy but tonight creepy wasn't the adjective I would pick.  Tonight sexy wins the adjective of choice.  Who wouldn't find a dad willing to volunteer to lead his son's Wolf Den completely attractive.  Justin is an amazing dad.  

OK Mom's time to play along.  What do the men in your life do that you find completely attractive that you wouldn't have ever imagined that someday it would make you week in the knees. 

Monday, October 18, 2010

Purple Thunder 31 for 21 Day 18



Rex has been know to tell me that he was born to play soccer.  This is his third year playing and he seems to be really enjoying it.  I love that he is learning about being part of a team, good sportsmanship and getting a ton of exercise. His basic skill level has improved so much each and every season.  They play both fall and spring and its fun to see the difference each time we start up again.  The boys are growing so much that the strength and coordination seems to increase overnight.  Rex seems to have a good understanding of the game and is really putting all the pieces together.  We couldn't ask for a better coach than we have this year.  It is a dad of one of the boys that Rex has played with all three years.  He is the perfect combination of enthusiasm and competitiveness.  Coach's main goal is for the kids to have a ton of fun but they are so busy having fun they don't even realize how much he has taught them about the fundamentals of the game.  They run hard at practise and love every minute of it.  The boys are learning about teamwork, respect and sportsmanship.  It has been a great experience for Rex and all of his team mates. 

All of the ways Rex is learning and growing keeps us motivated to take him to practise twice week.  The Saturday games are fun.  The excitment in the boys faces is priceless.  The last two weeks Rex has scored goals and he is so proud  he can hardly contain himself.  One boy this week scored three goals and I don't think he had scored yet this season so it was extra exciting.  The boys all get excited for each other too.  The high fives are big! You can watch the confindence grow each week with all of the boys.  It is amazing to watch!

The only flaw Rex can find it all of this is that his team got purple jersies.  I don't think its the shirts so much as the socks that put him over the edge.   Rex was less than impressed with the color but hasn't complained too much since the first sigh. 



Moving in...  I think we heard a story about this kids elbows on the car ride home


Making his move




The Purple Thunder team huddle


Last minute advise from Coach Dan


Rex's biggest fan wasn't so excited about the first cold weather of the season.


Uncle Trent and Trent Jr. cheering Rex on



Sunday, October 17, 2010

How I came to be Riley's mom 31 for 21 Day 17


I have always loved this story by Erma Bombeck.  Of course I had never seen it nor would I have appreciated it before Riley but that's beside the point.  I can't quite picture God up there picking babies to give to families but if he is I'd like to think that this is a good description.  I sure knew I hadn't been picked because I was so pure of heart. 

  After Riley was born it took me a long time not to be bitter and angry and then I realized that while he might not have singled me out for this duty God would be there to help me if I invited him to be part of our lives.  I try.  I try on a daily basis to remember not only to ask for help but to celebrate in all that we have been given.  To celebrate every accomplishment that the boys make no matter how little.  Riley addition to our family has taught us to enjoy the little moments along the way...  we already new how to party it up for the big stuff.

God Chooses A Mom for A Disabled Child
by Erma Bombeck

Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen? Somehow I visualize God hovering over Earth selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger.


"Armstrong, Beth; son; patron saint, Matthew.

"Forrest, Marjorie; daughter; patron saint, Cecelia.

"Rudledge, Carrie; twins; patron saint.... give her Gerard. He's used to profanity."
Finally, he passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one, God? She's so happy."

"Exactly," smiles God. "Could I give a handicapped child a mother who does not know laughter? That would be cruel."
"But has she patience?" asks the angel.


"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it. I watched her today. She has that feeling of self and Independence. She'll have to teach the child to live in her world and that's not going to be easy."

"But, Lord, I don't think she even believes in you."


God smiles. "No matter. I can fix that. This one is perfect. She has just enough selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, there is a woman I will bless with a child less then perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word.' She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations.
"I will permit her to see clearly the things I see --- ignorance, cruelty, prejudice --- and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."

"And what about her patron saint?" asks the angel, his pen poised in midair.
God smiles. "A mirror will suffice."

Saturday, October 16, 2010

Visitors 21 for 31 Day 16


Justin's brother and family are visiting.  We made a quick trip to the pumkin patch.  Apparently the kids didn't all stand next to each other at the any point during the day.  We have nice pumkins already to be carved up. 

CeCe and Riley


Cecelia Rose and her pumpkin


Trent jr.


Ri and his bear