Friday, October 7, 2011




The boys had a completely fun summer with our sitter Kristie.  Today we are missing our Kristie!  She left for School about a month ago and the boys have done really really well with the transition to a typical daycare instead of having someone come to the house.  Randomly Riley started asking for Kristie this week and even more randomly Kristie sent me a message to let me know she'll be in town this weekend and wants to stop by.  Those two have a connection! 

The boys were busy swimming, playing, picnicking and all around having a ton of fun all summer.  We wanted to make sure they had some activities so at the beginning of the summer we purchased season passes to Riverfront Park.  It is a park in downtown Spokane that has mini golf, a handful of rides and an IMAX theatre.  The first movie they saw was about Dinosaurs.  When I asked Riley about his day he simply said  DINO ROAR!!!  Apparently the movie was a little loud. 

When I was going through me email I found this little video that Kristie had taken during a golf outing.  Just tilt your head a bit...  I don't now how to fix it.

Thursday, October 6, 2011

Big Brother's views on the Hurricane



We were chatting with Rex about his little brother tonight at dinner and it mad me think it would be fun to share his view of having a brother with Down syndrome.  The answers to the questions below are straight from Rex. 

  1.   What is the best thing about  having Riley for a brother?  I get to wrestle with him a lot!
  2. What is the worst thing about having Riley for a brother?  He yells a lot.
  3. What is your favorite thing to do with Riley? Play outside.
  4. What is your least favorite thing to do with Riley?  When he tackles me.
  5. How do you feel about Riley having Down syndrome?  I think its fine.  It really doesn't make a difference. 
  6. Anything else you want to tell me about Riley?  Hmm he loves to have fun. 
Have I mentioned that Rex is a man of few words?  This kid cracks me up. With Rex you have to take the conversation when you can get it enjoy it in the moment cause it won't last long.  I think he sums Riley up when he said he loves to have fun! 


Laughter is the best medicine!


We laugh a lot around our house and typically the boys are the source of this laughter. We have found that laughter makes our world so much better.  I hope this video brings some laughter into your world.

I'm a little bitter that my coputer wouldn't let me upload this yesterday.  I missed day 5 of the 31 for 21 challenge. 





 



Tuesday, October 4, 2011

How did that happen?


Some time during the night when I wasn't looking my little Rex became a 3rd grader.  He is doing well this school year.  Not that I expected anything else but its always nice to see that first progress report come home with great remarks about how well he is doing.  He is reading up a storm in between soccer, football and regular homework.  Thank goodness he caught the reading but because I don't think I have the energy to wage that battle every night.  He has most of his best buddies in his class so he is in heaven! 


1st day of third grade-  ~ Aug 31, 2011


Big brothers first day of school


It was a great surprise to find one of Rex's best buddies at his table


Possibly the cutest teacher ever...  I think the school has a plan to help keep little boys interested in school

Riley started preschool two weeks after Rex started.  It was a nice way to transition into the school year.  We've had to make changes in childcare as well so Riley started a new daycare and preschool on the same day.  I was worried about all the changes being too much but he handled them like a champ.  I on the other hand was a mess but that's an entirely different story.

1st day of Riley's last year of preschool ~ fall 2011


A little help from big brother!


Working hard at daycare


The girls at daycare posed him for 1st day of preschool pictures

Riley is having a great start to the school year.  He is making new friends and impressing his teachers.  Since we've all but checked potty training off the list I think he will be all set for kindergarten next fall.  The real question will be if I'm ready for kindergarten in the fall.

Monday, October 3, 2011

Potty Potty Potty





We have been working on this for what seems like an eternity.  Almost two years to be specific.  On January 6, 2010 I posted about the first box of pull ups we bought.  We weren't really thinking about potty training at that point but he showed interest so we went with it.  As the year progressed he made progress and was going often at school when they took him but not ever telling anyone if he needed to go.  Fast forward to our end of the year conference at school this last June and the discussion of potty training came up.  Riley was making no progress from where he had been the previous spring.  That alone didn't raise any red flags but the fact that we would take him at home and then just a few minutes later he would have a little accident.  Never river down the leg but noticeably wet.  This "dribbling" did raise a red flag with the group around the table.  That combined with how much progress he had made in all other areas brought everyone to the suggestion that it was time to bring the pediatrician into the discussion. 

So off to the Dr we went for a ear infection I'm guessing,  but I made sure to throw in the questions about potty training.  We chatted about what was going on and his pattern of going and then dribbling not long after.  Our Dr wanted us to go see the one and only pediatric urologist in town.  Everyone had told me that if this was what we needed to do it would take months and months to get in.  I was prepared for a 6-9 month wait but figured we'd better get it on the books since potty training was one of the last obstacles standing in the way of Riley going to a typical kindergarten.  So I called made the appointment and was surprised that we could see the PA in just a few weeks.  We had to schedule an ultrasound pre and post void and then would see the PA when we returned from vacation in mid July. 

I'll catch you up on our fabulous trip through Montana another day but upon our return we made it in to see the PA at the Urologist office. We had just been to the ENT for a check up so as we get out Riley says "no ears NO ears!"  I assured him it wasn't his ears that this Dr was interested in.   It was a fairly routine appointment with a slug of questions about our potty habits.  Things were going along smoothly until it was time for the actually exam.  She checks him out as she causally looks over to me and says "has your pediatrician ever mentioned that his testicles haven't descended?"  We as a matter of fact have had the conversation and he assured me that they had.  I distinctly remember the part where he said "once they come down the don't go back up".  It has taken a lot of phone calls and conversations with nurses and Dr's and I can tell you the short version is that its a temperature issue.  If the testicles are up more than they are down (apparently his float a bit) the temperature is not what it would be if they were down where they were supposed to be.  This rise in temperature not only causes issue in sperm production, which lets face it I don't care about, but also can cause malignant tumors.  Enough said...  surgery scheduled.  I give the long version another day but for now back to the potty.

The whole testicle issue has nothing to do with potty training ( I know I was disappointed too) so we left the Dr's office with some "exercises" and a pinwheel.  The things I've learned from Riley...  If you bend over and touch the floor and take some nice deep breaths the floor of the bladder relaxes and allows you to finish emptying.  The pinwheel was to encourage the deep breaths.  It can be a little awkward but Riley now will bend over and take his deep breaths with no cue from us.  After a month of the exercises a lone we added a medicine that helps the bladder from having little spasms and contracting on its own.  This medicine is the miracle potty potion in my mind.  We wouldn't want to leave things as simple as just a medicine so the Urologist wanted us to do a full clean out to ensure that constipation issues weren't adding to the issues.  I didn't realize how closely 1 & 2 were connected.  Wow did I underestimate how constipated Riley was.  We've now added in a daily dose of miralax to keep things moving.  I'm hoping to transition to just adding fiber to his diet but for now we are dealing with the miralax and I was quite excited to discover Kirkland makes a version now! If ever a family needed it in bulk its mine.  I swear my life won't revolve around poop forever. 

Riley has made amazing progress in a very short amount of time.  He started on the magic potion toward the end of August and started school in big boy undies on September 12.  He averaged an accident a day the first couple of weeks but the last two weeks he has arrived home in the same pair of clothes and underwear that we sent him in.  Most days he wakes up dry and I've been brave enough to let him nap in undies and he typically is dry. 

We go back to the urologist office next week for a ultrasound and a check in.  Not truly sure why I'm going to pay for another office visit or what the ultra sound is looking for but I believe it all has to do with the magical potty potion.  I'll keep you posted on that.  For now we celebrate and enjoy not buying pull ups! 

Sunday, October 2, 2011



I figured we better back this train up to a few months to catch up on all the fun activities that have kept us so busy.  Most of our time seems to be spent running Rex to and from some practise or game.  Baseball is one of his all time favorites.  Riley loves to go to his big brothers games.  Typically not because he is an avid sports fan but more because his friends have really cute little sisters.  It is amazing what we can get him to do if he gets to go play with his  friends.  Rex played his first year of kid pitch baseball and boy did that give Riley a lot of play time with his buddies. 

Our friends Mike and Karen from  Billings came to visit during baseball season and Mike just happens to be an amazing photographer.  We have some really cool pictures as result.  Who knew the promise of pizza and beer after would so easily talk Mike and Karen into watching a really long cold baseball game.  You can check out Mike's amazing work here.  He not only photographs people but landscapes and you won't want to miss them I promise. 



Rex's pitching debut


Rex's home run stance...


As always Riley was having fun.  There was a sandbox at this field that all the little siblings loved.  I tried to pretend that Riley wasn't really eating the sand but you can see the grains of sand in his mouth in this photo.  YUCK!

Its a good thing Riley is such a good sport about sitting through all of Rex's activities.  He has managed to find good buddies in the little sisters and brothers on each team.  Rex's friend Colin's little sisters are among his favorites.  He has had a bumpy relationship with the youngest Eva.  Riley hasn't been able to say Eva clearly so it always comes out Eba.  Come to find out that Eva didn't like being called Eba and didn't understand that Riley wasn't saying it wrong on purpose.  Now that Riley is saying Eva they have a bit smoother time of things.  I think at the last football game they were both feeling a bit feisty because they sure weren't going to smile for the camera.  I think this picture is hysterical!

Saturday, October 1, 2011

Here we go....



October has snuck up on me way to quickly but its here and as we all know that means it is Down syndrome awareness month.  Could there be a better reason than celebrating Riley to get to blogging again???  I didn't think either.  I will be posting each of the 31 days of October in honor of Riley and all of his friends that share a lil something extra. 

Riley has been growing by leaps and bounds and there is lot to share that is going on in his world.  The rest of the family has been busy too so we'll spend October getting to know each other again.  Life is crazy as usual so I'm going to need lots of support from all my faithful commenters to help me make it through posting each day of October.  For those of you that don't blog please still leave a comment and let me know you've stopped by.  Just choose anonymous and don't forget to leave your name so I'll know you stopped by. 

Stay tuned for adventures of the world of Hurricane Riley.  There are lots of adventures to share... potty training and hearing aids to name a few.  See you tomorrow!



1st day of preschool 2011